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Tuesday 15 April 2014

Finally... I Know Who My Hero (Heroine) in This Life Is!!!!!

 
My absence from my blog has been spent concentrating 100% on my Hero (Heroine) - whom I have just realised is worthy of that honour!!
 
 
My baby girl, my only daughter - Naomi. Born in 1983 we were told she only had a 20% survival rate. She proved that wrong. Born with a Congenital Heart Deformity she had a shunt inserted at 2 days old. She was certainly a beautiful bonnie baby at 9lb 50z in amongst the other NICU babies who were all under 3lb!!! Again at 12 months old she had another shunt inserted. At 6 years of age we were told she wouldn't survive another 6 months - we could take her home and enjoy what time was remaining with her - or we could let her surgeon take her into theatre to see if he could do anything at all that might help her - she again defied death and her medical team gave us back a beautifully pink little girl (who had been so cyanose her feet, fingers and lips were blue black in colour). The fact that she adored her surgeon and her cardio specialist and believed they were going to fix her up to be like her brothers also played a big part in her surviving).
Again when she was 10 years old she defied certain death when her medical team at RMCH operated against all odds and presented us with a pink little girl - although she had complications following this surgery she fought and defied everyone and everything to come home with us. her specialist told us that in the following 6 months they saved the lives of 7 other CHD children with what they had learnt from their surgery with Naomi!!
Having a baby was something she was supposed not to do (medically that is). But she fell pregnant and in 2004 our beautiful little image of her mother Karah was born at 1250gms - she has just flown threw life with no problems what so ever - Naomi on the other hand had been airlifted to Sydney, had an emergency c section because her lungs and kidneys were shutting down and was a problem for the next 3 weeks. once again she rallied and came home with her little girl.
She now had a life plan - she was going to live to the age of 45 because then Karah would be 25 and they would have had made lots of memories and Karah was old enough and strong enough to continue on without her mum. Whatever hospital Naomi ends up in she is an immediate attraction for all medical students and interns and registrars as her surgery is very uncommon and she has had a baby!!!
Monday last week Naomi was hospitalised in Lismore (13hours away mind you) with severe bloating in the abdomen. 3 CT scans revealed a blockage in her liver (tumour) and 3 shadows on the outside of her liver. Her INR (warfarin) was 7.8 instead of the 1.4 it should be. She had approximately 10 litres of fluid in her abdomen (she looked as if she was 7 months pregnant).
So in the car we got and drove to Brisbane. It has been through this last week that we have seen how high her pain threshold is (we would be screaming messes if we had to cope with the pain she has been coping with); she has not been able to keep any food down and has lost a lot of body weight. The sample that was taken of the fluid came back clear contradicting what the CT results said.  Because her INR is not low enough they cannot do a biopsy for fear of haemorrhaging. Yesterday they did an MRI and today they started draining the fluid (7 litres so far). They are hoping the INR is lower tomorrow so they can do the biopsy.
Through all of this she has tried to eat, go without pain relief because that makes her vomit, and is generally easy to make smile and laugh!! We had to return home today and she is constantly on my mind - phone calls are good but not the same as being there with her. She is my hero because she keeps fighting against all odds (and she knows they are stacked against her survival again this time). What lays ahead for her we don't know but we do know she will fight tooth and nail and with every ounce of energy she has - she has 15 years of her life plan left to live!!!
So we are home to get commitments out of the way, to get things here on the farm sorted and then we will be back to Lismore to get this girl on the road to recovery!!! I read everyone's posts each day (I need to do that) but I really don't have the time to comment. I will post to my blog when I get a chance but that may not be very often over the next few weeks.
Happy Easter To each And Everyone Of My Followers - may you all enjoy wonderful family time over the Easter weekend!!!!


22 comments:

  1. I can understand why Naomi is your hero. What an inspiration she is. I wish her well and a good outcome for this next battle she is facing, and hope that things go well for you while you are back home. It must have been difficult to have to leave her there. Keep fighting Naomi, and best wishes as you go through this time. You will all be in my thoughts and prayers.

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  2. My thoughts and prayers are with you and your very brave courageous daughter.
    lots of love and hugs Laura.xx

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  3. A real inspiration. Prayers and thoughts to you and your family. Keep fighting Naomi. Xx

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  4. OMG she keeps defying the odds..............so I am sure she will fight this battle and defy the odds once again............she has a goal so that will keep her focused.......
    quickly get those jobs done and back to your girl.................praying everything goes as best it can............don't think about us here we will be here when you return to your blog..........travel safe....

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  5. What an amazing young woman Naomi is. Sending you hugs, Kerrie. xx

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  6. Hello Kerrie,

    Love and prayers to you all.

    Happy Easter.
    Bev.

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  7. Oh Kerry this had me in tears what a brave daughter you have ,she would be my hero too,all the best for your lovely family ,sending big hugs.xx

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  8. Oh this sent shivers down my spine and brought tears to my eyes. I do hope that everything turns out OK. I live in the Northern Rivers and wish there was something I could do to help. Take care. Louise

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  9. Dear Kerrie, words just seem to fail me right now. What an incredible woman your little girl has grown to be. Please let her know that we are all praying for her and thinking about her and wishing her the very best! She has so much yet to do. Thank you so much for sharing her story with us and please keep us as updated as you can. We will be thinking of you and all that traveling, so you be careful out there on the road. GREAT BIG BEAR HUGS ALL AROUND!!!!

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  10. Sending prayers out to you and to Naomi, Kerrie! Stay strong!

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  11. We find that nothing else matters when it comes to these dire situations with our family. Yes, get the farm set up, details worked out, and then back to your girl. I'm a praying gal, so I will be praying for you from the States. So, to you, Naomi, and the rest of your family, know that love, prayers, and best wishes are being sent your way, for wellness, strength, and a whole lot of laughter and love.

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  12. it sounds like your daughter is an amazing person for sure and you are as well for all that you to have endured through this -- I will be praying for a positive outcome for your family.

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  13. What a strong woman Naomi is! Prayers for all of you from the U.S.!

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  14. My thoughts and prayers are with you and Naomi during this battle. Stay strong for Karah, make sure she knows how hard her mother is fighting so she can stay with her. Have a peaceful Easter.

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  15. What an amazing woman she is - and you too!! Keep your spirits up. Sending good thoughts and prayers to you all.

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  16. Your daughter is an amazing woman! All that strength and determination will help her through this new adversity. We'll be thinking of your family and it's wonderful that you can be with her. ((hugs))

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  17. What an amazing spirit your daughter has in her! I will say a prayer for her.

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  18. What a beautiful young woman your daughter is. I will hold her in my heart.

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  19. Your daughter Naomi is proof to us all that will power is stronger than anything! To this add the strength her own daughter must give her. I send your family a big hug from Italy and will keep on thinking of you.

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  20. My thoughts are with you and yours. Stay strong.

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  21. Sending prayers to your strong , brave and amazing daughter... and to your family as you support her through her health struggles.
    ~Susie

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