Back in Sydney again - more tests for Naomi - she has had a tough couple of weeks so this trip is a little ray of hope for her - hoping her Drs can use a treatment to reduce the size of the tumour and extend her life a little but most importantly improve her quality of life. She has not been able to eat much at all and has dropped down to 47kgs and is spending a lot of time in her bed sleeping. She does get up each morning to get Karah off to school and each afternoon tries to be sitting in the lounge room when Karah gets home.
I have been fortunate to have accommodation in the hospital accommodation for country patients families. A lovely unit (bigger than a motel unit) and how nice is it that each room has a handmade patchwork quilt in it!!! The rooms have been sponsored by various service clubs and are in great demand - I will be here until Monday morning and will then be staying at a motel until a room becomes available again in this accommodation. It is a wonderful service made available to patients families.
Not the best photo but this is the new me - a result of telling my hairdresser I needed a change - so she decided I needed to go wild - I am supposed to put sculpting wax in it and spike it a bit!!! Short one side and longer the other - I am quite happy with it for the time being. I am still undecided about letting the colour grow out - the photo isn't showing up the white that is showing in it - I have decided it is a big step to let it go to it's natural colour - it is a nice white grey not a shabby grey - maybe a lighter blonde for a while!!! AND new glasses also - prescription instead of the cheapies!! I lost my last new prescription glasses 5 days after I got them - I am being very careful with these ones!!
That had better be all from me for now - I have a 6am rise to get across to the hospital in the morning - the medical team do their rounds at 7am each morning - you would think they would need a sleep in on the weekend wouldn't you!! Hopefully a good report on the tests she had today.